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Lindsay Birrell

Lindsay is co-founder and joint CEO of Realise Advocacy, supporting patient involvement in drug development and access processes. Formerly CEO of Metabolic Support UK and now Chair of Trustees at Medics 4 Rare Diseases, she has extensive experience in rare disease advocacy and healthcare policy. Lindsay currently serves as a Patient and Public Voice representative on NHS England’s Rare Disease Advisory Group and is a strong advocate for meaningful patient involvement in treatment access and decision-making.

 June 18, 2026  Beyond Inclusion: How Peer Research Improves Representation in Health Research
     Video

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